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Patient Advocacy Seminar for Palliative Care in Cancer Care

 
 
 
 

AGENDA (download Word document)

 

Patient Advocacy Seminar

June 29th–30th, 2009

 Mercure Budapest City Center Hotel, DEAK Conference Room

Váci utca 20 1052

Budapest, Hungary

Monday, June 29th

 

  8:00                       Registration

  8:30                        Welcome: Katalin Muszbek and Mary Callaway
Objectives, Introductions, Country Reports: Mary Callaway
Review agenda, training materials, action plan 5 min
Faculty introductions 5 min
Country groups review pre-conference worksheets 30 min
Country group introductions and reports 80 min (10 min per country)

 

10:30 - 10:45        Break

10:45                     Advancing Palliative Care Globally/Effective Palliative Care Policies: Kathleen Foley
Overview & WHO Public Health Model of Palliative Care Policies with country examples 30 min
Case study - Hungary Hospice and Palliative Care Program 15 min, Katalin Muszbek
Group discussion on how to select policies that are most likely to be changed 30 min

12:00                     Lunch

13:00 – 14:45      Organizing Yourself to Advocate: Nancy Lins
Presentation: Advocacy Skills 20 min (effective strategies, building a campaign, mobilizing people, challenges/barriers)
Panel of 4 case studies (10 min each):
Moderator: Stephen Connor
Policy: Dimitri Kordzaya, Georgia
Drug Availability: Snezana Bosnjak, Serbia
Education: Malina Dumitrescu, Romania

Implementation: Katalin Muszbek, Hungary  
Group discussion 30-45 min

14:45 - 15:00       Break

15:00 – 16:45      Collaborations: Linda Mowad
Presentation: Collaboration 15 min
Country group activity: Collaboration 45-50 min (worksheet)
Country groups report back 40 min (5 min per country)

18:00                     Cocktail

 

18:30                     Dinner – in the Hotel

Tuesday, June 30th

 

8:30                       Summary from Day One: Kathleen Foley

8:40 – 10:00         Communication and Advocacy Campaigns: Linda Mowad
  
Presentation: Developing a Media Advocacy Campaign 20 min
   Case examples (10 min each):
   Media Campaign – Katalin Muszbek
   World Hospice & Palliative Care Day - Claire Morris
   Country group activity: Developing a Media Campaign 45 min

10:00 – 10:15        Break

10:15 – 11:15        Communication and Advocacy Campaigns (Continued)
   Country groups report back 60 min

11:15 – 11:45        Evaluating Your Success: Linda Mowad
 Evaluation presentation 15 min (Types of evaluations, planning for evaluation, sharing your results)
 Large group discussion on evaluation experience 15 min

11:45 – 12:30        Lunch

12:30 – 14.30       Action Planning: Nancy Lins 
  Country group activity: Identify 1-2 policies that they will work to change 60 min
  Country groups report back 60 min

14:30 – 15:00      Summary, Next steps, Participants complete Evaluation Form: Kathleen Foley, Mary   Callaway
Close of Meeting